00:00:00.000Hello, hello, and welcome back to A Bit Fruity. I'm Matt Bernstein, and I'm so happy that
00:00:11.600you're here. So by the time this episode is published, Pride Month will be over, but gay1.00
00:00:18.360people still exist, or at least that's what I've been told. I talk a lot online about
00:00:25.100the AIDS crisis, and specifically the years between 1981, which was when the first mainstream
00:00:31.280article on what they called then gay cancer was published in the New York Times. By the way,
00:00:36.680it was called Rare Cancer Seen in 41 Homosexuals and was published in a little column on page 20.
00:00:44.460And 1996, which is when antiretroviral therapies, which are the drugs that keep people with HIV
00:00:51.240living long and healthy lives became widely available. During these years, the people most
00:00:56.900commonly associated with AIDS, gay men, intravenous drug users, were turned into pariahs by society0.56
00:01:04.320and by the state. You've heard the stories, you know, the government, the media, and the general
00:01:09.660public moralized the behavior of people who contracted the disease so that they could feel
00:01:14.540no responsibility at all for their callous attitudes towards what quickly became mass
00:01:20.420death and the collapse of entire communities. Famously, it took Ronald Reagan, President
00:01:26.880Ronald Reagan, rolling around in hell as we speak, four years to acknowledge AIDS in a press
00:01:33.560conference, and that was only because his friend, closeted movie star Rock Hudson, had just been
00:01:39.540diagnosed. As a gay man born in 1998, tell me I'm young. Just two years after antiretrovirals
00:01:47.380became available, I feel like I live in the shadow of this crisis, which I think is why I fixate on
00:01:53.420it so much. It's also because I will never not be jarred by the way that I learned about the AIDS
00:01:59.440crisis. Like, I don't know about you, but it just was not taught about in my school system. We didn't
00:02:06.820learn about the AIDS crisis in history class, and the extent to which we learned about it in health
00:02:12.180class was they told us AIDS stands for acquired immunodeficiency syndrome. Don't get it. Good
00:02:18.200luck. And so I did not know about this whole thing of like a generation of queer people dying. I just0.97
00:02:25.240wasn't aware until I learned about it through like an Instagram post when I was 17 or 18 years old
00:02:32.600and continued to spend my senior year of high school ruthlessly researching every single thing
00:02:38.920I could about this period in history, about this period in the history of my community that I had
00:02:44.700previously been oblivious to. I made this episode a few months ago called Surviving AIDS in the 80s
00:02:50.600with the brilliant Peter Staley, who lived with his diagnosis in the early years of the epidemic
00:02:56.660and survived to see medication help him live a long life. That is one of my favorite episodes,
00:03:02.620and if you haven't listened to it, I think it's worth the listen, not because of me, but entirely
00:03:06.780because of Peter. But like, what about everyone who did not survive AIDS in the 80s? People who
00:03:14.600died of AIDS in that time were rarely memorialized the way that we think is appropriate or normal
00:03:21.500for when a loved one passes away. Parents were so often ashamed that their child was gay that they'd
00:03:27.480lie about how they died to other people. They'd say it was the flu or cancer or something.0.62
00:03:34.120Deaths were swept under the rug, bodies removed from homes in literal garbage bags, no funeral,
00:03:40.840no obituary, nothing. But this is also recent history. Many of the people who were taken from
00:03:47.520us during this time would be like not even old, but like middle age today. They'd be at the pride
00:03:54.720parades that just happened. They'd be our professors and shop owners and writers and
00:03:59.180artists and actors and uncles and partners and friends. Some of them might even be
00:04:05.820landlords. Over the last week, I told people online to send me stories about their memories
00:04:14.260from the AIDS crisis. And today, I have compiled a series of vignettes sent from listeners of the
00:04:21.880show who were the lovers and nurses and family members and students of people who died from AIDS.
00:04:28.080This is a bit of a special episode as it's different in tone and format from my usual episodes, but I hope you'll find that in these stories there are still the same sometimes serious and sometimes lighthearted and meaningful moments I try to build this show around.
00:08:28.640And I said, not over my dead body, you motherfucker.1.00
00:08:35.720And I was prepared for this because my ex-lover, Juan Diego Michel, Ray Vaughn, his lover, when he died, told me they just shoved his body in a plastic garbage bag.0.99
00:08:47.880And so I had a velvet throw, the color of burgundy wine, trimmed in gold fringe, and I put it over Michael's body and I said, when you're away from our house, you do whatever you need to do, but not in front of me.
00:09:10.040and our house had views of Marin County and the Golden Gate Bridge
00:10:36.460And there were 800 people there. Five days before the memorial, the phone rang at our house in Berkeley, and it was somebody from Peter Jennings' office at ABC News in New York.
00:10:49.320And they said, we've heard about Michael, and we would like to do a live feed of up to seven minutes at his memorial on the evening news.
00:11:51.920It's June 29th, 2024. My name's Ann Butterfield. Thank you for your focus on an AIDS memorial
00:12:00.000special and for asking for and sharing these stories. Sometimes it seems that these beautiful
00:12:06.360men who we mourn are a lost generation. I was a lesbian in my early 20s in the San Francisco Bay
00:12:13.800area in the 1980s when my friends were getting sick. As we saw the lack of support from our
00:12:21.440elected leaders and fear among society, while people were suffering, I knew I had to help.
00:12:29.420For the next several years, I, along with many in the lesbian community, volunteered with local
00:12:35.880non-profits to provide care and support for our brothers in the Bay Area. It was a turning point
00:12:43.140for me and helped shape the rest of my life. We were all learning about AIDS and HIV together
00:12:49.840in the 80s, and we did what we could to talk with others to reduce the stigma and fear.
00:12:56.660We helped find resources for those testing positive. We hugged and loved them. We danced
00:13:02.600with them. We sat by bedsides. We gave rides to appointments and support groups. We brought them
00:13:09.880meals. We marched for them. We wrote letters demanding more research and funding. We often
00:13:16.700became their chosen family when they were not accepted by their own. We helped dress wounds.
00:13:23.800We prayed with them. We read to them. We laughed and cried together, and we later mourned for them
00:13:31.000and would honor their lives with beautiful squares in the AIDS Memorial quilt. I suppose
00:13:37.640one of the silver linings is that I got to expand my circle of friends and loved ones and these
00:13:44.400many men I got to know. They were artists, teachers, engineers, writers, students, and business owners.
00:13:53.120They were fathers, sons, brothers, husbands, and lovers. Those who gave their lives to AIDS
00:14:00.220are our heroes. We will never ever forget. Thank you.
00:14:07.640I was about five or six when my parents got divorced.
00:14:12.660My mom had been a stay-at-home mom, and she suddenly found herself thrust back into the workforce with two babies at home to care for, and no backup.
00:14:22.500That Easter was our first holiday without my dad, so we went to visit our nearest family in the Bay Area, my aunt and uncle, and their son Don,
00:14:31.200who i guess was technically my cousin but he was so much older than my sister and i that we always
00:14:37.160just called him uncle don uncle don had sort of a freddie mercury meets burt reynolds vibe
00:14:44.180he lived over in the castro in san francisco so cool he'd never been married he had no kids of
00:14:52.380his own but he loved to play dress up with my sister and i and teach us how to twirl in our
00:14:58.540dresses and have fashion shows with my aunt's jewelry. He called us his little princesses.
00:15:05.240We were just kids. We didn't know what gay or straight was. We certainly had no idea this
00:15:11.360behavior at the time might be considered strange to the rest of my Midwestern family.
00:15:17.200To my sister and I, he was just Uncle Don, and we loved him, and we thought he was fabulous.
00:15:23.060that easter my mom was seriously struggling my dad had failed to pay his child support
00:15:29.960and she explained to us through tears before we left that she was so sorry to disappoint us but
00:15:35.900that she just didn't have enough money to buy us new dresses that year it sounds silly now because
00:15:44.160you can just run out to target and buy a dress but back then we didn't get many new things
00:15:49.420and what we did get was really special and it was treasured and it was usually for a holiday
00:15:55.520so to not be able to provide that for my mom then was a really big blow of course it didn't matter
00:16:03.280to my sister and I we loved our mom and we were together and that's all that mattered
00:16:07.420so we stuffed ourselves into last year's dresses and last year's shoes and away we went to my aunt
00:16:14.280an uncle's house. When we pulled into the driveway of their little blue house in Tracy, my uncle Don
00:16:21.460walked out to the car and said, hi girls, we're gonna go for a little drive first. He took my
00:16:27.780sister and I to Macy's, that golden standard of a 1980s department store, and said we could pick
00:16:35.760out whatever Easter dress we wanted money was no object he wanted us to get the fluffiest
00:16:44.300pinkest most fairy princess dresses we could find and he was going to get them for us
00:16:51.140mine had puffed sleeves and little pearls on the bodice and a tulle underskirt that twirled
00:16:58.060it was so beautiful i loved that dress i wore it all the time after that first easter
00:17:06.360only when my mom was at work though she never knew sometimes i would just sit in it and watch
00:17:12.320three two one contact it was the first time since my parents divorced that it felt like things
00:17:18.020might be okay again that we felt kind of normal and my uncle don gave that to us
00:17:24.620he gave us a piece of dignity and love that we so desperately needed that year
00:43:11.400Hi, my name is Avila, and I am 20 years old, and I'm from Illinois.
00:43:17.100and my connection with the AIDS pandemic in the 80s and 90s stems from my biological uncle.
00:43:26.020I'm adopted so I have never met my biological family in person however I was lucky enough to
00:43:32.540have contact with my biological mother via email and when I was in high school I was opening up to
00:43:39.660her about my sexuality and being queer and she responded saying that she is not frightened by my
00:43:47.840sexuality and that she is very understanding and open to queer people and queerness in general
00:43:56.260because her brother, her older brother, my uncle, was gay and he was diagnosed with HIV and later
00:44:05.120on AIDS and he was never treated for it. He didn't want to rot away in the hospital, she said, but
00:44:12.180she didn't know about any of this at all because he didn't tell anyone in the family. She told me
00:44:20.920that she told me that him and his boyfriend went to Germany together, and she hadn't heard
00:44:36.640from him since because he ended up taking his own life in Germany before the aides could
00:44:43.740kill him essentially and after she had told me this it honestly like really really broke my heart
00:44:54.880it made things really complicated because I see photos of him and he was such a handsome man and
00:45:03.180he looks a lot like me oddly enough I'm not used to seeing people that look like me because my
00:45:09.400biological family is you know in another continent ever since i've just had a new outlook on life
00:45:16.980honestly i wish i had the opportunity to speak to him and every day i pray that one day i'll be able
00:45:25.020to speak to my and meet my family in venezuela yeah so that's my my experience thank you so much
00:45:32.740for listening. Hey Matt, this is Emily from Redondo Beach, California. I want to share the
00:45:40.460story of my late Uncle Carl, my mother's brother, who died of AIDS in 1989. Before I get into the
00:45:46.860story of my Uncle Carl, I have to tell about how my uncle's coming out led to my mom and dad
00:45:52.600becoming a couple to where they have now been married for 41 years. My parents were servers
00:45:59.100at a restaurant in college where they became friends and developed a tight-knit friend group.
00:46:04.700My dad's best friend and my mother's brother became very close, and while we can all see where
00:46:10.660this story is going, it was quite a shock in 1980 when my dad caught his best friend and my mom's
00:46:16.740brother getting hot and heavy at their apartment. And they both admitted to my parents that they
00:46:21.580were gay and had fallen for each other, but it was still a lot for everyone to take in.
00:46:28.080Being friends who needed to process this new development, my parents went out to El Torito for dollar margaritas to discuss how two of their closest people in their lives had been able to keep the secret for so long.
00:46:40.940The margaritas kept flowing, one thing led to another, and my dad woke up the next morning in my mom's waterbed, and he's never left.
00:46:48.660Their friend group remained strong, the newly out gays were welcomed with open arms, and while my grandparents were raised good old-fashioned Eisenhower Republicans, they also accepted my uncle for his true self
00:47:01.760Years past, the 80s did their thing, and my uncle got sick
00:47:06.480I was born in 1986 and had the pleasure of being my uncle's first niece
00:47:12.900Unfortunately, a couple years after I was born was when my uncle was diagnosed with AIDS, after being well for some time.
00:47:20.760His story goes like many other stories in the 80s.
00:47:24.580He was a pariah, doctors couldn't and didn't want to do anything and treat him, and he progressed very quickly into a painful disease.
00:47:34.780My grandmother, who was unable to have children of her own after being sterilized when she had tuberculosis as a young woman, adopted my mom and Uncle Carl at birth from separate families.
00:47:47.900She was a good, strong, community-oriented, loving woman who brought many people into her life that needed love and a place to call home.
00:47:58.260And that didn't change when my Uncle Carl came out as gay, or even when he got sick.
00:48:03.900My Depression-era conservative grandmother did everything in her power to care for her son.0.98
00:48:09.580When he was in pain, my grandmother would drive her giant Buick down to South Central LA and buy
00:48:15.660marijuana from drug dealers because it was the only thing Uncle Carl could take to help keep
00:48:21.140the pain away. She stayed by his hospital bed every day and every night until the day he died.
00:48:27.260after his death she hand stitched the most beautiful quilt to add to the national aids
00:48:33.740quilt where she went yearly and even took me and my sisters with her one of my earliest memories
00:48:39.860is running around the Washington Monument lawn where the aids quilt was spread out and touch
00:48:45.620all of the fabric and imagine that the quilt would put everyone in the world to bed at night
00:48:50.200like a big safe warm place to sleep to this day my mother and sisters and I will continue to be
00:48:56.820activists in the gay community to honor my late grandmother and my late uncle who endured that
00:49:02.320horrible time with as much grace and love for others as anyone could possibly have. Thank you
00:49:08.800for listening, Matt. Growing up, I had always heard the stories of my mom's best friend, Charlie.
00:49:15.560They met in junior high in the late 70s when my mom transferred from Catholic school to the public
00:49:20.320school system. There, she was the self-proclaimed awkward fat Catholic school girl that the kids in0.99
00:49:26.780the city public school would bully. She found solace in her new best friend, Charlie. Son0.68
00:49:33.680of a Methodist minister, the kids at their Massachusetts public school didn't know what
00:49:37.780to think of him either. He was also, as my mom would call him, effervescent and would
00:49:43.420be relentlessly bullied for his more effeminate ways. Charlie had golden curly hair and a
00:49:49.920quick witty sense of humor. He also had a rebellious streak in him despite his desire
00:49:55.460to follow in his father's footsteps. Charlie and my mom almost didn't graduate high school
00:50:01.060because they ditched so many days their senior year. Instead of just ditching to get drunk at
00:50:05.860the beach, which they did do a lot, Charlie also dragged her to art museums, orchestra performances,
00:50:11.060and many other cultural events happening in Boston. My mom often credits Charlie with
00:50:16.760filling in her education where the Lynn public school system failed. Charlie also had a very
00:50:22.960distinct sense of style, as evident by his bright periwinkle tuxedo he wore to the senior prom.
00:50:28.760I had the best dressed to date, my mom would say. Shortly after they graduated high school in the
00:50:34.820early 80s, Charlie finally came out as gay to her. She was surprised when he first told her,
00:50:41.200which I still think is the funniest thing. Rumors started going around that Charlie was
00:50:46.620light in the loafers, and my grandmother warned my mom to not sort herself with that crowd.
00:50:51.340who knows what they'll think she would tell her later that night she went to her first gay bar
00:50:58.160charlie introduced her to drag culture and my mom remembers tearing up she had never seen
00:51:05.080femininity celebrated that was plus size nor felt as accepted as she had in her life while at these0.97
00:51:10.680bars to her this wasn't a gay club this was a gathering of the outcasts of society and my god
00:51:18.060were they fun. Charlie was fun and an amazing friend who always accepted my mom for who she0.99
00:51:23.640was. Knowing who my mom is, I know she did the same for him. Then the AIDS crisis began
00:51:32.700to develop. All of a sudden, people were going out less and Charlie's friends were getting
00:51:38.060sick. Really sick. The bar started to shut her down due to lack of business and Charlie
00:51:44.860my mom lost their safe space. What horrified my mom and Charlie the most was how the apathy
00:51:51.320of gay people turned into straight up fear and anger. People would be scared to even
00:51:56.980touch Charlie. When Charlie finally delivered the bad news that he had gotten sick too,
00:52:03.720my mother became terrified for him. He reassured her it was going to be okay and that he was
00:52:10.740going to continue to live and love life, which he did. He traveled around the world. Paris was
00:52:17.980his favorite city. He was also able to get an art history degree from UMass Boston.
00:52:24.020One of Charlie's life goals was to be a college graduate.
00:52:28.760He made amends with his family and father, and even made amends with his belief in God.
00:52:34.240While he never became a minister, his belief in God strengthened at the end of his life.
00:52:38.120as a fellow queer christian hearing this part of his story was amazing
00:52:42.720that we could be both that he had the courage to be both
00:52:46.300charlie died in the early 90s right before the miracle cocktail came out
00:52:53.860it's been over 30 years and my mom still talks about him but about the love she felt for him
00:53:01.380the fun they had and the connection she felt for the first time in her life
00:53:05.220she doesn't have many pictures with him
00:53:08.140and all I've been able to learn about him