Missing Witches - October 07, 2024


FIXED Cancer Season #3 - Fire with June Jordan

Topics
Cancer Season #2 - Earth with Suzanne Simard WF Briana Pegado - Explore Your Disruptor Energy

Episode Stats


Length

49 minutes

Words per minute

133.78

Word count

6,650

Sentence count

248

Harmful content

Misogyny

15

sentences flagged

Toxicity

15

sentences flagged

Hate speech

11

sentences flagged


Transcript

Transcript generated with Whisper (turbo).
Misogyny classifications generated with MilaNLProc/bert-base-uncased-ear-misogyny .
Toxicity classifications generated with s-nlp/roberta_toxicity_classifier .
Hate speech classifications generated with facebook/roberta-hate-speech-dynabench-r4-target .
Topics generated with Qwen2.5-3B-Instruct.
00:00:00.000 You aren't being a proper woman, therefore you must be a witch. 1.00
00:00:06.620 You must be a witch. 1.00
00:00:10.540 Welcome to a strange new season of the Missing Witches podcast.
00:00:16.240 Usually here at the Fall Equinox, we go looking for the witches we've been missing,
00:00:20.580 but this summer I was diagnosed with stage 3 invasive breast cancer,
00:00:25.180 and Amy had her land wash away in a flood
00:00:28.440 leaving a crumbling wound
00:00:30.100 and we find ourselves on a precipice
00:00:33.620 we're here and we come bearing stories
00:00:38.180 but we can't guarantee what shapes they'll take
00:00:41.960 I've started us off with a miniature cancer season
00:00:46.520 with episodes drawn from the elements
00:00:49.260 I began with water and continued with earth
00:00:53.480 and today we're on fire.
00:00:57.100 This will be the last in this mini-season for now.
00:01:01.300 I'll pass the torch to Amy while I walk the rest of the chemo path,
00:01:06.940 get burned by the lasers of radiation,
00:01:10.060 and see you on the other side.
00:01:13.920 Before I begin, many of you have kindly asked
00:01:17.720 how to support us at this time.
00:01:19.760 Amy and I dream and labor to make a living through our Missing Witches work
00:01:25.600 So here are a few ways to help
00:01:28.560 Click Join the Coven on MissingWitches.com and become a supporting member
00:01:35.460 Visit our shop and grab some merch
00:01:39.680 We have a new Bless This Just mini-collection
00:01:44.040 Created with protection magic for all our changes and transitions
00:01:48.920 order our books or oracle deck from bookshop or amazon or your local witch shop
00:01:57.100 free ways to help that really do help review our book or podcast on apple or amazon if you haven't
00:02:06.440 yet or simply share our work with people who might love it your support means everything
00:02:15.380 thank you
00:02:17.020 infinitely
00:02:18.380 okay
00:02:21.580 detour over
00:02:23.840 though it's always there
00:02:26.780 isn't it
00:02:27.360 keeping the flame alive
00:02:29.680 today we follow the fire
00:02:32.700 and walking ahead of us here
00:02:36.020 carrying a torch
00:02:38.740 to the dark
00:02:39.500 is June Jordan
00:02:45.380 In 2023, Sri Ram Shamasundar, founder of HEAL, an organization that trains frontline health workers from countries around the world, including indigenous communities in the United States, wrote,
00:03:05.960 i entered the university of california berkeley as a freshman a child of indian immigrants
00:03:12.420 keeping my head down and taking primarily science classes to fill a humanities requirement i
00:03:19.540 meandered into a class called poetry for the people a course taught and conceived by june
00:03:25.880 jordan the great poet and activist in one of our last classes a teaching assistant publicly
00:03:34.100 accused June, in front of a class of 250-300, of failing to stand up on behalf of Palestinian
00:03:42.860 people. She didn't show up for class the following week. The weekend after, I went over to her
00:03:51.380 house in North Berkeley. She was surprised to see me, but she let me in. The morning
00:03:59.880 sun lit up the kitchen and made specks of dust visible. We all knew she had breast cancer, 0.80
00:04:08.180 but we didn't know the extent of her struggle. About 40 bottles of medications were laid
00:04:15.180 out on the kitchen counter to treat cancer and fight nausea and pain. We sat at her kitchen
00:04:24.400 table. I tried to find the words to encourage her to come back to class. I stumbled as I
00:04:31.620 tried to convey that the whole class knew of her commitment to the Palestinian struggle.
00:04:38.480 June remained unmoved. She was worn down. She began to talk.
00:04:46.720 she said her entire career had been brought to a halt in 1982 by the political stance she took
00:04:55.280 in the village voice when she wrote a poem titled apologies to all the people in lebanon
00:05:00.620 about the israeli military's massacre of palestinians in the refugee camps in sabra and
00:05:06.580 shatila june paid significantly for taking a pro-palestinian stand our bibliography shows
00:05:15.240 a gap between the mid-80s and mid-90s when publishers refused to work with her.
00:05:21.280 That afternoon, in her sunlit kitchen, I listened to her. End quote. June died of breast cancer at
00:05:30.780 her home in Berkeley, California, on June 14, 2002, at the age of 65.
00:05:40.160 In Apologies to All the People in Lebanon, she wrote,
00:05:43.400 they told you to go 135 000 palestinians in beirut and why didn't you take the hint 0.69
00:05:52.580 go there was the mediterranean you could walk into the water and stay there what was the problem
00:05:59.620 i didn't know and nobody told me and what could i do or say anyway
00:06:05.260 yes i did know it was the money i earned as a poet that paid for the bombs and the planes and
00:06:13.320 the tanks that they used to massacre your family. But I am not an evil person. The people of my
00:06:21.400 country aren't so bad. You can expect but so much from those of us who have to pay taxes and watch
00:06:28.820 American TV. You see my point? I'm sorry. I really am sorry.
00:06:37.020 1982 in an open letter to adrian rich jordan wrote i claim responsibility for the israeli
00:06:46.960 crimes against humanity because i am an american and american money has made these atrocities
00:06:52.060 possible i believe that you cannot claim a people and not assume responsibility for what that people
00:06:58.920 do or don't do. You cannot claim to be human and not assume responsibility for the value
00:07:06.740 of all human life. End quote. June Jordan burned with injustice, with heartache, with
00:07:15.700 rage, with luminosity and passion. When the cancer came to her breasts, she was an ember
00:07:24.840 burning to stay alive. Though exhausted till the end, she burned with love. After the Harlem riots
00:07:35.920 of 1964, Jordan found that she was, in her words, quote, filled with hatred for everything and
00:07:43.840 everyone white. She wrote in Civil Wars, quote, it came to me that this condition, if it lasted,
00:07:54.260 would mean that I had lost the point. Not to resemble my enemies. Not to dwarf my world.
00:08:03.700 Not to lose my willingness and ability to love.
00:08:07.740 She told Sriram Shamasundar, quote,
00:08:15.020 about her friendship with Fannie Lou Hamer,
00:08:18.320 the great civil rights leader who put her body on the line
00:08:22.320 to register black folks to vote throughout the South.
00:08:26.780 June at the time had a deep aversion to all white people, a hatred even. 0.65
00:08:32.520 Hamer apparently said to Jordan,
00:08:34.140 ain't no way, no how you can hate anyone and hope to see the face of God.
00:08:41.520 That shifted her.
00:08:44.380 She realized it was that bedrock belief that enabled Hamer to face vicious threats and murderous hate
00:08:51.400 and respond with love, first and foremost, for her own salvation.
00:08:59.060 End quote.
00:08:59.820 When I was in bed recovering from the bilateral mastectomy and the wounds still burned across
00:09:07.580 my chest, my college friend, who carries the name of the ancient healing flower Yarrow,
00:09:13.720 sent me a small silver medallion, which had the elephant god of beginnings etched on one side,
00:09:20.280 and on the other the words, I am the flame above the beauty in the fields.
00:09:25.460 when mark saw it he said what so like the sun i don't think so or or not exactly
00:09:35.280 my friend wrote i wanted to send you something that called on the healing voices that i hold
00:09:42.040 close the christian roots that i never quite managed to uproot and the hinduism that both
00:09:49.480 gave me respite in my teens
00:09:51.140 and is a part of my son's heritage.
00:09:54.680 Sending you Hildegard's ferocious luminosity
00:09:57.920 and Ganesha's fortune and prosperity.
00:10:04.460 Coppies and sunflowers,
00:10:07.760 goldenrod and yarrow
00:10:09.100 had shown up in every waiting room.
00:10:12.280 All the different hospitals and staging rooms
00:10:15.460 on the way to surgery,
00:10:16.580 even in the social worker's office where I went when I froze in rage and terror and panic and
00:10:23.280 couldn't do basic things like follow up with the oncologist that I'd been referred to after the
00:10:29.180 first oncologist I'd been referred to by my surgeon wouldn't take me because I was out of area
00:10:35.040 and the social worker made calls for me followed down the lines of broken telephone
00:10:40.980 figured out that the faxed referral had arrived
00:10:45.540 missing crucial pages
00:10:47.100 caught me just as I was about to fall through the cracks
00:10:50.940 got me in to see them and start my chemo the very next week
00:10:56.480 even her office had them
00:10:59.400 hallucinatory and revelatory 0.95
00:11:02.900 hot red and yellow and white flowers
00:11:06.080 always slightly out of focus
00:11:09.840 always looking like the flowering itself were fire
00:11:14.960 something loving and alive just above the blooms
00:11:20.920 i think that's what the channeled message from hildegard von bingen means
00:11:27.020 love spirit god if you like is that flame above the beauty in fields the poppies and
00:11:37.940 sunflowers of every room i went to in those cancer days the yarrow and golden rod that riot in my
00:11:45.140 untended gardens love is the becoming the sustaining fire the hope the other side of the lemniscate
00:11:57.420 from rage love logic screams and whispers terror has never made fewer terrorists two million people
00:12:07.820 displaced are not becoming less radicalized because it's 40 years after june jordan wrote
00:12:14.620 that and here we are again with apologies to lebanon and both sides all sides all beings
00:12:22.500 need their gardens and their grandmothers need ancient trees need to stop living in a terrified
00:12:30.720 state if their rage is ever going to come out the other side where we can meet again
00:12:35.160 in the care manifesto by the care collective the authors wrote in this manifesto we argue that we
00:12:45.900 are in urgent need of a politics that puts care front and center by care however we not only mean
00:12:53.440 hands-on care or the work people do when directly looking after the physical and emotional needs of
00:12:59.340 others, critical and urgent as this dimension of caring remains, care is also a social capacity,
00:13:08.960 an activity involving the nurturing of all that is necessary for the welfare and flourishing of
00:13:15.540 life. Above all, to put care center stage means recognizing and embracing our interdependencies.
00:13:26.000 End quote.
00:13:27.260 i'm sorry these epistles are more fragmented now i'm rubbing my head as i write trying
00:13:36.680 to remember the thread and hair showering down on the keyboard and coating my fingers
00:13:41.560 after my first round of chemo three days later my mom was caring for my kiddo but in a fractured
00:13:50.260 mind, anxious, panicked state, accidentally gave her a cup of poison. She thought she was giving
00:13:57.060 her oat milk, but she gave her cow milk instead, and we spent the day in the emergency room. It
00:14:02.460 took two EpiPens and a shot of cortisol to get her stable. One week later, we were back in the
00:14:09.460 emergency room as I doubled over, gray with pain, and found out I needed my appendicitis out. 1.00
00:14:15.140 two days after i got home from that surgery all blown up like a balloon from the co2 they fill 0.75
00:14:22.280 you with for laparoscopic surgery on the exact day i was supposed to watch out for fever or
00:14:28.380 increased pain that would indicate an internal infection which despite the triple dose of
00:14:34.060 antibiotics i was more susceptible to having my white blood cells temporarily decimated by chemo
00:14:40.300 I got my period, and my hair suddenly started to fall out all over my breakfast plate.
00:14:47.080 May pulled out a clump and cheered, the medicine is working.
00:14:52.460 The next day, we made a bonfire, and May and the neighborhood kids swam in the lake,
00:14:58.100 and we quietly marked the equinox, the balance day.
00:15:04.060 We asked the dark to protect us as it came hushing in.
00:15:07.380 the kids walked the paths with all the dried flowers i had gathered in the spring to make a
00:15:13.500 summer tea i'd envisioned drinking all winter but no loose tea is allowed on chemo because of the
00:15:19.740 risk of bacterial infection so i asked the kids to walk the paths and shout or chant their best
00:15:26.660 protection incantations while they gave the flowers back and they did an excellent job
00:15:33.140 And that night, my friend Robin died of cancer.
00:15:39.300 She was brilliant, and I loved her.
00:15:44.380 I can't talk much about that yet.
00:15:48.120 She was someone I wanted to be like.
00:15:50.820 Someone I ran to when I saw her.
00:15:54.420 Someone who shaped how I thought when we studied together.
00:15:59.000 And then she was gone.
00:16:03.840 One week after that, my breast blew up like a balloon, red and hot.
00:16:08.560 They pulled two comically large needles worth of fluid out and put me on more antibiotics
00:16:14.100 and delayed my chemo again, ticking my chances of survival a little further into the ash.
00:16:23.120 All this to say, my mind is everywhere.
00:16:26.820 Rage and love are all over the place
00:16:31.600 Like dried flowers on the path
00:16:33.820 Like all this hair
00:16:36.040 Back in June, it had been dangerously hot
00:16:44.480 Everyone at the hospital was on edge
00:16:47.860 A man rammed himself into a parking space
00:16:51.240 We'd been waiting for
00:16:52.280 Screaming he'd been waiting longer
00:16:55.340 I asked Mark to just please walk away, though steam was coming out of his ears.
00:17:00.180 I said, imagine the man is in a terror panic, trying to get to someone who he loves in crisis inside.
00:17:07.720 I said, imagine we filled his window with bowers of goldenrod.
00:17:14.480 Inside, we heard the emergency code white over the intercom.
00:17:19.820 Multiple times. Someone was violent somewhere.
00:17:24.500 Things were on the crackling edge.
00:17:28.060 Our woods aren't built for heat like this,
00:17:30.680 but at least it smelled beautiful with the last lilac trees in bloom.
00:17:35.280 It was all green and evening and the birds were singing and the air was thick like soup.
00:17:41.700 I swam and the water felt off to me.
00:17:46.760 It felt tacky between my fingers.
00:17:49.180 Mark didn't feel it but I know now not to dismiss things that I might be imagining because I was
00:17:56.160 right. Something was wrong. I had cancer. Ipso facto all my anxieties are true. Something is
00:18:05.780 wrong with the water and in fact at the end of the day when I'm tired the whole world is on fire.
00:18:12.060 later i wrote on a cancer forum i'm angry at root causes these days and every article that
00:18:22.280 is still pointing at individual choices like exercise or sitting still too much as a risk
00:18:28.280 factor for cancer rather than digging into the systemic issues that are causing a rocket ship
00:18:33.020 increase in young people with death in their breasts is making me rage i get that those things
00:18:39.540 give readers who don't have cancer some sense of control, but it's like pouring salt on open
00:18:44.760 wounds to imply that we, individual bodies now fighting for our lives, could have done much of
00:18:49.800 anything to prevent this, when the whole planet is dying for the same reasons we are. I am three
00:18:56.980 weeks post-bilateral mastectomy. It's 5 a.m., and I am screaming into the void with you.
00:19:03.480 In 2001, Barbara Ehrenreich, co-author of Witches, Midwives, and Nurses, wrote an essay called Welcome to Cancerland, after she, too, was diagnosed with breast cancer.
00:19:18.220 She wrote,
00:19:48.220 to me without ever rousing the patient from anesthesia. More recently, feminist advocacy
00:19:54.680 groups such as the San Francisco-based Breast Cancer Action and the Cambridge-based Women's 0.98
00:19:59.940 Community Cancer Project helped blow the whistle on high-dose chemotherapy in which the bone marrow
00:20:05.960 was removed prior to otherwise lethal doses of chemotherapy and later replaced to no good effect
00:20:13.080 as it turned out. Like everyone else in the breast cancer world, the feminists want a cure, 1.00
00:20:19.140 but they even more ardently demand to know the cause or causes of the disease without which we 1.00
00:20:25.040 will never have any means of prevention. Quote unquote bad genes of the inherited variety are
00:20:32.540 thought to account for fewer than 10% of breast cancers, and only 30% of women diagnosed with
00:20:39.020 breast cancer have any known risk factor, such as delaying childbearing or the late onset of
00:20:45.480 menopause. Bad lifestyle choices, like a fatty diet, have, after brief popularity with the
00:20:53.360 medical profession, been largely ruled out. Hence, suspicion should focus on environmental
00:21:00.660 carcinogens, the feminists argue, such as plastics, pesticides, DDT and PCBs, for example, 0.96
00:21:09.800 though banned in this country, are still used in many third world sources of the produce we eat.
00:21:15.540 And the industrial runoff in our groundwater. No carcinogen has been linked definitely to human
00:21:23.040 breast cancer yet, but many have been found to cause the disease in mice. And the inexorable
00:21:28.160 increase of the disease in industrialized nations about one percent a year between the 1950s and 1.00
00:21:34.100 the 1990s, further hints at environmental factors, as does the fact that women migrants
00:21:40.780 to industrialized countries quickly develop the same breast cancer rates as those who are native
00:21:46.720 born, end quote. Ehrenreich wrote this over 20 years ago, and not everything she said then still
00:21:54.400 holds up. For one thing, that rate of about 1% increase per year continued for a while,
00:22:01.060 but then something else happened. According to a study led by researchers at Washington
00:22:07.020 University School of Medicine in St. Louis, after 2016, for reasons researchers do not yet
00:22:13.500 understand, the trend line made a steep uphill turn, suddenly increasing at 3.76% per year.
00:22:22.400 the most dramatic difference was a greater than 20% increase risk of breast cancer among women
00:22:30.520 born in 1990 compared with women born in 1955. End quote. My sister, Megan, a public health
00:22:39.940 researcher born in 1990, called me one morning in the second week post-surgery and was lucky
00:22:47.260 enough to find me weeping and terrified. I said, we all know these cancers are increasing because
00:22:55.120 we poisoned the earth. I mean, we just know that in our bodies, right? We didn't start the fire
00:23:01.600 and we can't fucking escape it. It's in our food. It's in the pipes. Even out here, vegans drinking 0.99
00:23:08.240 water from a mountaintop lake. There are microplastics in the fucking falling snow and I 0.99
00:23:13.740 want to know, are we at the crest of a wave of cancer patients holding these poisons in our 0.99
00:23:19.940 fatty tissues, just like the whales in the St. Lawrence Seaway? The most prominent source of
00:23:26.320 microplastics in our water supply comes from tires, apparently, and every different ocean
00:23:31.880 has its own garbage patch, and they are hundreds of miles wide. And will this wave outpace the
00:23:38.020 best we can do to change, and will all our children die? Why don't we know what causes it?
00:23:44.720 Why is it so unfair? What the fuck is going on? Every other article is about how there's 0.99
00:23:51.560 microplastics in rain and testicles and everything in between, then why don't we 0.99
00:23:55.780 stop making it for every goddamn useless thing? Or dying? Mom remembers when plastic bags first 0.99
00:24:03.640 appeared thinking oh no we don't know how to get rid of this this is bad that's almost 50 years ago
00:24:14.600 now why can't we see the huge red flag that's where i feel my intuition imagination terror
00:24:23.240 pinging feeling like i'm someplace in a wave and i'd like to think it's cresting that we are the
00:24:29.820 generation that pays for it, but we're also in the healing. Maybe they will do it, follow the oily
00:24:35.960 trails back and fight off the payoffs and make regulations, like the Montreal Accord that healed
00:24:42.960 the ozone layer. Maybe it's not just the start of huge collapse because the systems were too
00:24:49.080 entrenched, didn't love us enough. I'm so sorry to say all this to you when you have a human in you.
00:24:56.180 and Megan who is pregnant who has lived in Burkina Faso and Haiti and Uganda and Panama
00:25:04.920 working with women in isolated communities to learn what the gaps are in their health care
00:25:10.840 and how systems can be designed led by caregivers on the ground in the line of fire
00:25:16.820 to connect health care and community support to save their lives and the lives of their children
00:25:23.840 Megan who was my doula when May was born who is gentle and hopeful in the face of all the things
00:25:33.600 she's seen says I think it's kind of a beautiful thing that people keep fighting to improve things
00:25:43.380 and you know nothing is perfect we're still learning a lot but most people want to do what's
00:25:49.400 best for their patients and that's why they set up frameworks to make sure that's at the heart
00:25:54.860 of the treatments that are offered like the clinical trial standards are incredibly rigorous
00:26:01.160 you know starting with animal trials like the least sentient animal out there moving up to like
00:26:07.820 you know one gorilla that's it we're only willing to test one gorilla there has been a terrible
00:26:15.900 history. And it's not to say that we won't learn more in the future. But I take comfort from things
00:26:23.800 like the Belmont Report, a massive outline of ethical standards for the field that caused a
00:26:29.840 groundswell of change. And though I sometimes disagree with health professionals I meet, I have
00:26:36.680 to say I almost always feel in them a need to do no harm, to do the right thing. I'm thinking about
00:26:45.840 the places where I work, and I mean, I would be surprised if there were more than a handful of
00:26:50.540 CT scanners in all of Southern Africa. It is a privilege that we have access to that.
00:26:57.740 It's about resource equity, which is slow to change. As she spoke, I felt that other kind
00:27:05.260 of fire from her. That steady one. The one that can sustain across the long durée of real change.
00:27:15.840 and I felt the rage fire in me
00:27:19.880 slowly changing form
00:27:21.480 I'm so angry, I said
00:27:25.660 and so tired
00:27:27.060 and my body hurts so much
00:27:30.380 but I do have faith
00:27:33.220 in these circles of the sciences
00:27:35.440 and caregivers and activists
00:27:37.860 and amplifiers
00:27:39.240 passing their rituals forward
00:27:42.320 gathering knowledge
00:27:44.580 such that it is replicable slowly, slowly over a long time.
00:27:51.660 Slow, brutal, burning, hopeful progress.
00:27:56.980 On September 23rd, 2024, in a journal called Frontiers in Toxicology,
00:28:04.840 the authors published their findings that
00:28:07.060 nearly 200 potential breast carcinogens have been detected in food contact materials.
00:28:14.580 on the market.
00:28:17.460 When limiting these results to migration studies published in 2020 to 2022, 76 potential mammary
00:28:25.600 carcinogens have been detected to migrate from food contact materials sold in markets
00:28:31.200 across the globe under realistic conditions of use.
00:28:36.640 This implies that chronic exposure of the entire population to potential mammary carcinogens
00:28:43.700 from food contact materials is the norm
00:28:46.960 and highlights an important
00:28:50.760 but currently underappreciated opportunity for prevention.
00:28:56.680 Reducing population-wide exposure
00:28:58.580 to potential mammary carcinogens
00:29:00.660 can be achieved by science-based policy amendments
00:29:04.740 addressing the assessment and management
00:29:07.300 of food contact chemicals.
00:29:10.140 End quote. 0.94
00:29:11.640 My mom wasn't paranoid.
00:29:13.700 she was right something is wrong with this stuff
00:29:18.420 like Kathy Turcanian who knew her daughter's body was buried in the backyard of the people
00:29:26.440 who had adopted her that she'd been murdered by the people who had sworn to give her a safe home
00:29:32.220 who in the documentary into the fire said of the rage that fueled her all the way to justice
00:29:39.280 I just need to get to the other side of this fire
00:29:43.420 may we be fueled by rage
00:29:47.340 and love
00:29:49.220 on behalf of our children
00:29:51.500 to get to the other side of this fire
00:29:54.420 this wave of avoidable death
00:29:57.840 this endless war
00:30:09.280 We decided we would tell May that what I had was called cancer.
00:30:15.780 Sometime before she went back to school in the fall,
00:30:18.740 and sometime after I had my surgical drains removed,
00:30:21.980 got to shower, sometime between urgencies when things felt okay again.
00:30:28.520 It was hard to believe I would feel better, but then one day I did.
00:30:34.760 Getting undressed to get into the shower and looking in the mirror for the first time,
00:30:39.280 I didn't feel the nauseating dysmorphia.
00:30:43.460 The stitches were healed to a gentle red
00:30:45.640 and mostly hidden under the shadow line of my breasts,
00:30:48.900 and I'd been lucky to get to keep my nipples,
00:30:51.640 and the pain had finally burned itself out.
00:30:54.600 There were lightning bolt moments of nerve pain sometimes,
00:30:58.260 but they were rare and felt like a whisper of future feeling returning, maybe.
00:31:05.100 so i suddenly felt weirdly good and i opened the door from the bathroom into our tiny galley
00:31:13.840 kitchen where mark stood cooking dinner and said mark look at my boobs because they were cute you
00:31:20.160 know more perky than they had been after two years of breastfeeding that's for sure 0.73
00:31:24.620 a little square around the edges but it was okay in that moment
00:31:29.700 the day before may had cut my hair and mark had buzzed it pretty short this was before it began
00:31:38.380 to fall out a moment of us feeling good taking a tiny ounce of control over outcomes
00:31:45.340 and i kind of liked my new tough look i didn't feel like i would ever feel good again and then
00:31:53.520 suddenly, for a moment, I did. And all the prismatic colored lights came shining back in.
00:32:02.340 Mark was like, whoa, dude, you're a cute lady, sweet boobs. And I danced around and was like,
00:32:09.680 oh, this is what trans theorists mean by gender euphoria.
00:32:16.020 it's like spinning in a dress
00:32:20.380 that fluttered out perfectly on the dance floor
00:32:22.960 of my mom and stepdad's wedding when I was eight
00:32:25.560 and I was filled with the glee of being girl me
00:32:29.980 can you call to mind a feeling like this
00:32:34.220 of being so in the right body
00:32:38.420 right place
00:32:40.080 that it just flickers with pleasure and joy
00:32:44.820 and can you hold that memory like a flame in your heart like the flame over the fields
00:32:54.280 can we use it to light torch lights of kindness for every single child person every single one
00:33:05.260 deserving of that safe delicious full body joy cancer took from me is still taking
00:33:14.600 But two teams of skilled surgeons lining the sides of my bed under the blinding white lights, backed by hundreds and thousands of researchers and patients and activists and ancestors, gave me this back.
00:33:31.120 this shiver of pleasure in my own weird skin
00:33:35.940 feeling like a sexy cyborg
00:33:39.540 color back in my cheeks
00:33:42.120 suddenly able to digest food again
00:33:45.320 after two years of losing weight
00:33:47.940 and being exhausted
00:33:49.180 swaying my hips like a small fire
00:33:53.520 in the basket of myself
00:33:54.940 was crackling to life again
00:33:56.800 so i knew it was time to tell her at that time may knew everything but the word and we'd been
00:34:07.300 careful to introduce the idea that cancer could be many things before telling her that's what was in
00:34:13.780 me because before that all she knew was cancer was a death that came suddenly taking her beloved
00:34:22.680 best friend grandmother but cancer was also a quick surgery on her uncle's skin all better
00:34:30.500 a character in one of her favorite graphic novels who lost her leg to cancer years before
00:34:36.740 but is at comic-con now falling in young love by the time we told her the word she wasn't bothered
00:34:44.460 by it she said ever since the surgery is done i'm not scared but kids and adults
00:34:52.520 we think we're fine
00:34:54.080 but things move slow and ancient
00:34:57.580 through our subconscious
00:34:58.760 you have to watch a forest for days
00:35:02.720 after you think a fire is out
00:35:04.380 because it smolders in the leaves
00:35:07.560 and deep in the soil
00:35:09.180 that night was the first night
00:35:12.020 I was able to do her bedtime rituals
00:35:13.960 after surgery 0.84
00:35:14.960 I met her at the bottom of the stairs
00:35:18.180 wearing the red long-sleeved nightgown
00:35:20.380 printed with flamingos
00:35:21.760 in Santa hats that exactly matches her favorite night dress. We'd found this duplicate in a
00:35:29.680 thrift store, and since she was wearing her one every day, no matter the season, we figured we'd
00:35:35.160 get it, even though it was a size 12. She'd grow into it, but then she'd convinced my sister to
00:35:41.020 try it on, and then me. This was months before my diagnosis, and she'd been so delighted by it.
00:35:48.820 Mom, your boobs look so cute!
00:35:52.640 So I put it on again for our post-surgery grand reunion bedtime. 0.85
00:35:58.640 With 200 milliliters of saline in my expanders and a sports bra,
00:36:03.600 my boobs did look cute again.
00:36:05.540 Some weird angles, but I thought it would be okay. 0.64
00:36:08.980 And it was.
00:36:10.660 She was so excited and also so careful with me
00:36:14.360 in a way that I was grateful for but wished she didn't have to be.
00:36:19.340 We were talking about something, and she said,
00:36:21.760 we didn't even know you'd have a surgery then.
00:36:25.100 And I said, yeah, that's so weird that we didn't know what would happen next.
00:36:29.700 We know a little bit about what will happen next now.
00:36:32.560 Do you want to know?
00:36:35.560 May said, no.
00:36:36.700 I mean, yes.
00:36:38.960 I said, okay, in a couple of weeks, once you're back in school,
00:36:42.380 I'll start to have to go to these appointments where I'll have to sit still for a long time
00:36:46.560 and get a red medicine from a needle in my arm.
00:36:50.740 She said, that's okay.
00:36:52.460 I don't mind needles.
00:36:53.440 They don't even hurt me.
00:36:55.520 She was, unfortunately, experienced at needles.
00:37:00.460 I nodded and continued.
00:37:02.780 And I'm going to have days when I feel good.
00:37:05.300 And then sometimes I'm going to have days when I'm tired and I feel sick
00:37:08.820 because the medicine is really strong.
00:37:11.460 okay may said i'm gonna get you a bucket of skittles no wait i'm gonna go back to that
00:37:18.860 store at the campground where we sell those candy rings and we'll each have a candy ring
00:37:23.520 and watch tv when you have a bad day and i should have just said amazing but sometimes the feeling
00:37:32.500 comes like you have to warn them and then you scare them when you're really trying to help them
00:37:39.280 prepare and I said there might be days when I feel too sick for candy and I just need to sleep
00:37:46.040 her eyes got wide and she looked away in a way she does when she wants to leap out of the current
00:37:53.260 moment let's just read now she said tucking in next to me gently not as close as either of us
00:38:03.300 wanted to be. After we turned out the light, she put her tiny palm to my face and I put a kiss in
00:38:10.320 it. And then she kept it there and said, keep going. And I knew she was remembering when she'd
00:38:16.860 been even littler. And I'd take her hand and kiss it over and over and tell her I was filling it up
00:38:22.340 so she had them all day. So I smooched and smooched her tiny hand as she laughed and we yawned
00:38:29.380 and she fell asleep. That night, I lay in bed in the dark and felt the weight of the rain in the air.
00:38:37.680 There was a red warning on our phones, telling us to expect record fall as we caught the edge
00:38:43.100 of Hurricane Debbie. I felt in that weight the terror of all the children under fire,
00:38:51.440 all their parents trying to shield them from the worst of it, to tell them stories about safety,
00:38:57.360 to fill their palms with magic protective kisses
00:39:00.620 and then throw their bodies over them 0.52
00:39:02.700 when the roof comes down in flames.
00:39:10.480 I woke in a dark panic,
00:39:12.480 choking like there wasn't enough air in the room,
00:39:15.220 and Mark followed me as I stormed half-asleep
00:39:17.660 around the dark house up to the porch
00:39:19.680 to gasp in the breathing wind of rain finally falling.
00:39:24.100 may woke up too and mark tried to be the one to help her fall back asleep
00:39:30.180 but her cries ramped up the spiraling ladder of hysteria no it was supposed to be mom this time
00:39:37.680 so i made my way to her and i lay down with her and mark lay down on the other side
00:39:43.380 and she clung to me though i couldn't turn and hold her
00:39:46.920 my movement was still limited by bands of pain across my chest that kept me in place
00:39:52.680 when she started to talk about quesadillas i knew she was asleep
00:39:57.780 i stayed all night long so i would be there when she woke up the next morning we played for hours
00:40:05.700 as the rain fell but when i said i might need to go lie down soon she fell apart and it turned
00:40:13.460 into a repeated screaming sobbing demand for tv or candy we tried to find a couple ways out of
00:40:21.260 those collapsing bridges, and what finally worked was playing with fire. I stopped trying to help
00:40:28.260 or offering to hold her, and instead asked, what do you think might help? And okay, first she said
00:40:35.180 TV, and next she said candy. But then she said, deep breaths? And I said, oh, deep breaths? How
00:40:43.060 would that work? You know, you're always telling me to take deep breaths. Oh yeah, how could we do
00:40:49.640 it, like blowing out candles? And what I meant was this little exercise where you pretend your
00:40:55.620 fingers are candles and she blows them out. But she lit up and clambered off the couch and I 0.99
00:41:01.680 followed her, new little jolt of joy moving through the house. She climbed up on the old
00:41:07.860 gas fireplace that still sat fat in our living room, though we didn't use it anymore.
00:41:12.680 it's time to finally use these candles she said pulling down these small dark beeswax candles she
00:41:20.440 had chosen as a treasure from the booth next to marks at an artisan market fundraiser for her
00:41:26.200 school back in the fall she had refused to light them for a long time in the end she found five
00:41:34.040 candles around the house and we took them out on the porch where we could hear the rain
00:41:38.360 she ran and got the lighters too she knows where there's a ceramic goblet full of brightly colored 1.00
00:41:45.860 bicks on the counter behind the stove and she knows how to pull a chair up and reach them 0.98
00:41:50.180 she brought them over and i lit a candle and she blew it up and she asked me to light it again
00:41:56.140 and blew it up and she asked me to light it again and i said well we have to take a little time in
00:42:01.520 between it gets hot it's burning my fingers take a deep breath into your nose and out through your
00:42:07.840 mouth to blow it out. Oh, I said, do you know what a square is? Yeah, she said, and
00:42:15.280 drew it in the air. I said, okay, so let's breathe in on the count of four to draw the
00:42:21.560 up, and then hold it full for four to draw across the top, and then breathe out for four
00:42:31.060 to draw the down
00:42:32.340 and then hold it empty for four
00:42:35.920 to complete the square
00:42:37.300 and then blow out the candle again.
00:42:42.160 And we breathed and drew the square.
00:42:45.840 She lay her head on the table
00:42:47.600 with her little eyes closed for just a sec 0.83
00:42:49.800 and then she blew it out.
00:42:52.920 I said, do you remember the four elements?
00:42:55.600 What if we draw the square with those elements?
00:42:57.900 Like what would breathing in be?
00:42:59.220 and she said fire and I said yeah that makes sense I like the idea of being crackling full of fire
00:43:06.300 like inside you there's a little fire and it never goes out when you pull up with air then
00:43:12.440 the little fire is strong what if holding at the top is air the bottom is earth and breathing out
00:43:20.820 is like water running out and taking anything we don't need away she said okay okay light the
00:43:27.820 candle again and so we did and we breathed like that for a while then she set up the rest of the
00:43:35.140 candles in a square with one in the middle and she said let's pretend it's my birthday
00:43:39.300 birthday candles are old delicious magic and i laughed and said of course of course it's your
00:43:47.480 birthday and you should make a wish and blow out the candles we lit them and sang happy birthday
00:43:53.880 And I said, make a wish, make a good wish, blow out the candles.
00:43:59.060 And she did it.
00:44:00.160 And she said, let's do it again.
00:44:02.400 And I said, okay, this time let's imagine that every one of your relatives and your
00:44:08.780 ancestors and your friends and all of their cats and dogs and snakes and birds, everyone
00:44:14.520 who has ever loved you is all around you and they're all singing happy birthday.
00:44:20.100 And she said, oh, okay.
00:44:23.880 And we lit the candle and sang.
00:44:27.380 And she beamed.
00:44:28.700 And I said, make a wish.
00:44:30.680 And she blew out the candle and said, again.
00:44:34.660 I said, okay, this time let's imagine.
00:44:36.720 All those people are here for your birthday party again, but they're all little kids.
00:44:41.820 And she said, aww.
00:44:45.260 And I said, even Papa is a little kid.
00:44:48.240 And she said, aww, so cute.
00:44:52.200 and we lit the candles and sang happy birthday and I said make a wish and she closed her eyes
00:44:59.420 smiling and blew out the candle and I said what should we imagine now and she said babies
00:45:06.900 I said oh they're tiny babies yeah she cheered and we're holding them you're holding me as a
00:45:16.260 tiny baby and I'm holding you and she got very tender looking and said yes I said you're taking
00:45:25.060 good care of me and she said yes and gave me a big weepy hug and we lit the candles and I sang
00:45:35.320 her happy birthday and she rocked me as a tiny baby and I rocked her as a tiny baby and she
00:45:42.220 made a wish and blew out the candle. And I said, one more? Okay, she said. What should it be?
00:45:53.020 Just now. We're back here, right now in the present, and it's us? Yeah. Perfect, I said,
00:46:01.520 and I lit the candle, and I sang her happy birthday, and she made a wish and blew it out.
00:46:07.340 and i tried not to wonder if she was storing up happy birthdays like she was storing up kisses
00:46:15.700 just in case june jordan wrote in the intifada incantation poem number eight for bbl
00:46:25.560 i said i loved you and i wanted genocide to stop i said i loved you and i wanted affirmative action
00:46:33.700 and reaction. I said I loved you and I wanted music out the windows. I said I loved you and
00:46:39.740 I wanted nobody thirst and nobody cold. I said I loved you and I wanted, I wanted justice under
00:46:46.360 my nose. I said I loved you and I wanted boundaries to disappear. End quote.
00:46:55.340 And that's how we felt then. I love you and I want cancer to stop, genocide to stop,
00:47:03.260 Earth poison to stop.
00:47:05.340 I love you, and I want justice for every earth being, every child,
00:47:11.460 every flickering bit of love that remains.
00:47:15.820 Sri Ram Shamasundar wrote,
00:47:18.560 We look to our elders to demonstrate another way of being in this broken world.
00:47:24.840 Another way of extending our circle of commitment to the person in front of us 1.00
00:47:29.160 or to a group of people, like she did with Palestinian people.
00:47:35.380 June taught us it is important to practice self-love
00:47:38.680 and to show your commitment to your community,
00:47:41.980 as well as to extend that care to those struggling for justice around the world.
00:47:48.340 We don't need to choose between caring for ourselves and caring for the world.
00:47:53.220 there is no dichotomy or inconsistency in this orientation to the world and and both
00:48:01.580 jordan gave us that end quote
00:48:06.360 the fire in us is love and rage and and both i love you and i want nobody thirst and nobody cold
00:48:20.260 Let's jump through the burning bush
00:48:24.480 Right at the center of binaries
00:48:26.300 And call forth with our love
00:48:28.220 Something brand new
00:48:30.120 June wrote
00:48:32.880 You say you love me
00:48:34.540 And I have begun
00:48:36.320 I begin to believe maybe
00:48:39.120 Maybe you do
00:48:40.720 I am tasting myself
00:48:43.920 In the mouth of the sun
00:48:46.100 She is that flame above the beauty in the fields now
00:48:55.880 And may she rest in power
00:48:59.000 In the mouth of the sun 1.00
00:49:01.160 And bless it fucking be 1.00
00:49:10.440 You must be a witch 1.00
00:49:12.440 Thank you. 1.00