00:00:00.000I have some good news in this dark, crappy time that we're living through, generally,
00:00:11.420right now. We have gotten more than 200,000 downloads for Under the Influence since we
00:00:18.840made it independent about two months ago. And that is all because of you. Because all
00:00:24.320of you are incredible and amazing. And I appreciate my listeners so fucking much. I do. I love all of
00:00:32.020you. And so I just wanted to share this with you to know that we have a community. We did this
00:00:38.440together. And I really couldn't be happier. I couldn't. I'm tearing up a little bit. But thank
00:00:45.260you. Thank you. Thank you. Thank you. I adore you more than I love coffee, cheese, and even tequila.
00:00:54.320Before we started reporting on this episode, I didn't know that much about the world of cancer
00:00:59.680influencing. I didn't know anything, really, until my friend Kelly Stewart sent me a message
00:01:05.600to tell me about her journey. I haven't seen Kelly in forever. We met on a press trip about
00:01:12.100a decade ago. She was already a mom of a bunch of kids. I think she had five back then. And I
00:01:19.620was not a mom of any kids. And I'm sure I was having a lot of fun on that trip.
00:01:26.400But in the meantime, we have followed one another on the socials, because that is one of the few
00:01:31.300things that social media is good for, following the peoples, following the peoples that, you know,
00:01:36.420you meet once, but you really like, that you really want to keep in your life.
00:01:40.120But I hadn't heard Kelly's big news, her big life-changing news. A couple of years ago,
00:01:45.660Kelly was diagnosed with breast cancer. She went in for a routine mammogram, and it did not go the
00:01:53.420way she expected. After Kelly found out about the cancer, she just wanted to find one thing in her
00:01:59.540life that she could control. Like a lot of women that I know and love, Kelly is a doer. She's a
00:02:05.880doer and a fixer. As moms, as all women in the world, we are constantly trying to figure out how1.00
00:02:11.980to fix things around us, how to problem solve. And so Kelly did all of the research. She talked
00:02:19.640to all of the doctors and did the treatments that they recommended, but she also wanted to do more.
00:02:25.000She wanted to know more. While Kelly was waiting for her treatments to do their thing,
00:02:29.640she went down a deep rabbit hole of cancer influencers. And some of it was helpful,
00:02:36.300because finding community when you are going through it, that can be a wonderful thing.
00:02:42.780But some of it got dark and unhelpful and even scary. Now, Kelly is the first to say that there
00:02:50.980is a lot of good that can come from following others who are battling the same things that
00:02:56.100you are battling. But the good does come with the bad. And I asked her to come on today to
00:03:01.160share her personal story with diving into this cancer influencer rabbit hole and what her life
00:03:06.080is like on the other side. How are you? I'm good. I had no idea you were on this on this journey.
00:03:21.100It's been a heck of a year. God, that fucking sucks. I am so, so sorry. How is everything now?1.00
00:03:30.080like what is the status so i am technically in remission i'm three weeks post-op um for my last
00:03:39.260surgery for the reconstruction um okay so now it's just monitoring blood work every three months for
00:03:46.340a year and then every six months and then once a year and just praying that it doesn't come back
00:03:51.120so all of the praying yes praying jesus so that's where we're at well i want to dive right in
00:03:59.760Because when you messaged me, I couldn't think of a better person to have on the show to talk about what happens on social media surrounding cancer because you are you're literally going through it right now.
00:04:21.940So I'm going to back up a little bit and just talk to me about your story, about your diagnosis, and then what you started seeing on the Instagram and or the TikToks.
00:04:35.040So in October of 2021, I had a mammogram.
00:04:41.300I wasn't even, like, due for one, but they were running a special for $30 for Breast Cancer Awareness Month.
00:04:47.400So I went ahead and did it. And I got a letter in the mail a month later that said, I don't remember exactly what it said, but it didn't sound alarming. It was something to the effect of you have dense breast tissue. And we had we saw a spot that we'd like to look at further. Could you make a follow up? And I just kind of brushed it off. I don't have a history of breast cancer in my family. I'm healthy. I'm young. Like I didn't check any of the markers. Right.
00:05:13.320so I just kind of I didn't really pay close attention to it in May of 2022 I went and saw
00:05:20.600my OB and I told him and he did an exam like there was no lump there was nothing so he was like I'm
00:05:27.440not I'm not overly concerned but since they sent you this letter I'll write you a script to get a
00:05:32.020follow-up so I waited until July because you know it was summertime and kids were out of school and
00:05:38.400whatever. And so I went back in July. And like, as soon as they did the mammogram, they sent me
00:05:45.680to another room to do an ultrasound. And that's when I started to get like a weird feeling in my
00:05:49.880stomach. And then they did the ultrasound and they found two spots, one in my breast and one
00:05:57.160under my arm that they thought were suspicious. And so they wanted me to get biopsied. So a week
00:06:02.860later, did the biopsy. And before I even went into the biopsy, the radiologist told me she was
00:06:09.280like, you know, what I'm seeing here is highly suspicious. I just want to prepare you ahead of
00:06:14.520time that this does not look normal. This doesn't look like a cyst or anything like that. And so
00:06:21.180that was when it really got real. So I left that biopsy knowing I probably had cancer and it was
00:06:30.720like five days, really sucky days of waiting. And then we got the call officially that I had
00:06:36.760a tumor in my left breast and a tumor under my left arm. Oh my God. Yeah. And it's crazy. I still,
00:06:45.160I didn't have a lump. I couldn't feel anything, but the tumor was fairly large, but it was growing
00:06:51.360backward toward my chest wall. So that's why I couldn't feel it. Now, once I knew the lump was
00:06:57.980under my arm, I could feel the lump under my arm. But before that, I didn't know it was there.
00:07:04.020When you get diagnosed, like everything happens very quickly. You know, within a week, I had an
00:07:09.800appointment with a breast surgeon. I had a recommendation for an oncologist. And it all
00:07:15.840just like happens super fast. You're in the doctor with the breast surgeon. And, you know, he sits me
00:07:19.940down and he kind of draws out like this is where we're at. And essentially, because I was a smaller
00:07:24.600person. You know, I wasn't really a candidate for a lumpectomy. They recommended a mastectomy.
00:07:30.620They recommended a double mastectomy just because I'm young and it's easier for reconstruction
00:07:36.020purposes and, you know, just removing the possibility of it spreading, that sort of thing.
00:07:42.780And then, you know, two days later, I'm in the oncologist's office and talking with him about
00:07:46.880what potential treatment options there'll be. And then a week later, I'm with a meeting with
00:07:50.820a plastic surgeon. And so all of this happened really, really fast. And then with my particular
00:07:56.360brand of breast cancer, it's hormone receptor positive, which is a good thing. It's a slow
00:08:04.240growing cancer. So because it's a slow growing cancer, it's like all that happened really fast
00:08:08.900and then everything just stopped. And I was like at the mercy of waiting on insurance approval.
00:08:14.980And so it was a lot of waiting, which gave me maybe just a little bit too much time to think and start reading. And so I just stumbled down the rabbit hole of the cancer influencer world. And there's a lot out there.
00:08:34.520um and for me personally i mean like a lot of women but i'm a i'm a fixer right so okay
00:08:42.580here's a problem that needs to be fixed so i'm gonna find the solution and so i ended up just
00:08:47.800kind of stumbling into the world of holistic healing for cancer and um you know looking at
00:08:56.180diet and how diet plays a role and alternative methods for treating cancer and i want to say on
00:09:03.180the front end that I don't necessarily disagree or think that any of that is bad advice.
00:16:11.560And we are back with Kelly Stewart.0.98
00:16:14.960As we said earlier, Kelly had fallen deep down a rabbit hole of cancer influencers after her surprise diagnosis with breast cancer.0.70
00:16:23.500She was following people who recommended intense diets, who vilified chemo, and who applauded all kinds of expensive treatments that some influencers and their followers had mortgaged their house to do.
00:16:36.520how did you finally deal with it did you have to have to just did you get to a point where you
00:16:42.440shut it off where you said i can't i can't follow this anymore and was there any point where you
00:16:48.900were almost convinced not to do traditional treatments not to do chemo yeah um so i had
00:16:56.000my mastectomy actually it was a year ago yesterday i had the double mastectomy and
00:17:00.360initially, I was told, hey, we got all the tumor. We had clean margins. You should be good to go.
00:17:07.400So I thought, oh, great. I'm going to get out of this with just surgery. This is awesome.
00:17:12.300Well, then they run this like specific test on your tumor when you have cancer and it tells you
00:17:18.600your risk of recurrence. And my test came back putting me at borderline moderate risk for
00:17:24.460recurrence. And because of that and because of my age, they recommended then chemo to be more
00:17:29.940aggressive. And I was I was adamantly opposed. I was like, no, they said I don't need to do it.
00:17:35.340They got clean margins. I'm eating so clean. I'm exercising and doing all these things. And
00:17:41.640there's some weird stuff like I'm talking like coffee enemas and like stuff that I'm like,
00:17:47.740I don't know what's going on here. I'm doing this, but they say it's working. So like you go down
00:17:53.560some weird, crazy rabbit holes. I was doing IV vitamin therapies and it was just all these
00:17:59.980things. So I thought there's no way. And but my husband, he's he works in like genetic testing
00:18:04.940for lung cancer. So he's got connections with a lot of oncologists. So he sent my paperwork to
00:18:10.840several different oncologists to get other opinions. And four out of five doctors that
00:18:16.140looked at my my diagnosis and my paperwork recommended chemo and so at that point I felt
00:18:23.420like okay if if all of these doctors are recommending it and I knew that my husband
00:18:30.000wanted to do it and he was super supportive and understood where I was coming from at the end of
00:18:36.220the day I just felt like if I don't do this chemo and the cancer comes back I will I will feel
00:18:43.300terrible about it. But if I do the chemo and the cancer comes back, at least I'll know that I
00:18:49.280tried. And so that was sort of the catalyst. But the big catalyst was finally like this night my
00:18:55.300husband and I were sitting in bed and we were talking about it. And I get a little emotional
00:19:01.380even just remembering. I just had I had such a panic attack. I couldn't breathe. And I just felt
00:19:07.880like this overwhelming sense of if I don't make a decision and do something, I am going to die.
00:19:14.240And so I had to make a decision. And so at the end of the day, I just felt like
00:19:18.620I needed to do it for my husband and also for me and for my kids. I needed them to know like,
00:19:25.380mom did everything that she could. So that was sort of the night that I made the decision. So
00:19:31.620I ended up starting chemo in January. And now that you're 10 months, nine months removed from
00:19:42.860that, how do you feel about about that decision? You know, I it wasn't fun. It wasn't as bad as I
00:19:51.640was afraid it was going to be. I mean, the most traumatic thing really was losing my hair. And
00:19:58.080that was the thing that I was the most scared about. And that was the thing that I hated the
00:20:01.600most. But on the other side of it, you know, it wasn't as terrible as I thought it was. I was
00:20:09.800going to be my and again, within this like cancer influencer world, you get a lot of opinions that
00:20:16.720all oncologists are big pharma and they're just out for your money. And that's why they recommend
00:20:21.840chemo. But of the five doctors that looked at all of my files, my oncologist was the only one that
00:20:30.160was like on the fence about chemo. He was the only one that was like, yeah, I could make a
00:20:34.640case for you not doing chemo. And he actually connected me with an integrative doctor here
00:20:39.920in town. And together they worked up a plan to allow me to use some integrative approaches like
00:20:47.960the IV vitamin therapies and red light therapy and different supplementation while also doing
00:20:55.600chemo. And so I think the combination of that integrative plus traditional allowed me to walk
00:21:01.960through chemo fairly well. My first my first round was really hard on me. I lost 12 pounds in like a
00:21:10.900week because I was so sick. But then they adjusted my meds and they upped the B vitamins that they
00:21:15.840gave me in my IV vitamin therapies. And I really wasn't it wasn't bad after that. So on the other
00:21:23.860side of it, I'm still dealing with like some gut issues and, and, you know, my body is still kind
00:21:29.140of repairing itself, but I don't regret, I don't regret doing it now that I've made it through,
00:21:35.220you know? Yeah. Yeah. And tell, tell us where you're at now. What, what is, what is the status?
00:21:43.460So I'm, I'm in remission. I just had my reconstructive surgery three weeks ago. And
00:21:51.580so now it's just now I feel like I'm healing mentally and emotionally. I'm still I'm still
00:22:00.440really struggling with some food fear. I still, you know, like this morning I woke up and I was
00:22:07.840starving and all I wanted was a bowl of cereal. Like that's just the easiest thing in the morning
00:22:12.020when you're hungry. But I'm afraid I'm still afraid of eating milk. And, you know, so I made
00:22:18.480my tofu and lentils and it's fine. But like, in some regards, I really love this lifestyle of
00:22:25.940eating more like vegan. And I mean, I'm totally happy with it, but I'm still dealing with some
00:22:33.800of the food fears. And recently I saw there was a big influencer online who was diagnosed in March
00:22:42.980with stage four colon cancer. And she like went all in on the holistic healing. And she was doing
00:22:50.740all the things that I had read about. And I had tried, you know, the the vitamin therapies and
00:22:57.040all the supplementation and the juicing and the diet. And online, she kept coming in and saying,
00:23:03.800you know, the cancer is getting better. And the doctors told me that my only survival was chemo,
00:23:07.720but they were wrong it's getting better and then like two weeks ago there was a message on
00:23:14.100instagram like pray for her she's not doing well and then two days later she was dead and and i
00:23:18.840just thought how terribly sad because the whole time she was telling us that she was getting better
00:23:24.940and she wasn't and i'm sad for her but i'm sad for everybody who took her advice and and followed
00:23:31.640her lead yeah that is is terrifying because these people also have so much influence right like
00:23:42.540people aren't people are legitimately taking that advice and it's a life or death situation
00:23:50.380here i'm so sorry that you still have all of this food fear like i i don't i don't want this for you
00:24:00.640Like that is just it's the last thing that you need at this point in your in your life and your journey.
00:24:08.100It's so I want you to have the cereal is what I want for you.
00:24:12.800I know. And that's what my husband keeps saying.
00:24:15.400And, you know, and I'm working through that and I and I have a therapist and I recommend to everybody who walks through cancer to to get therapy.
00:24:24.880because it is so emotionally draining to face your own mortality, especially when you have
00:24:35.760children. And, you know, I just I don't know if I will ever fully recover from the day that we told
00:24:44.820our teenagers and the looks on their faces. Like, I don't I don't know if I'll ever fully
00:24:50.020heal from that experience and so when you're in this position and you're um you're so frightened
00:24:57.740that's the other i had a conversation with a woman yesterday who was just recently diagnosed and she
00:25:02.300was asking me what she should do and the first thing i told her was stay off the internet
00:25:06.180just stay off the internet i do think that there there are a lot of really great alternative
00:25:14.060therapies coming out for cancer. And it's good to be aware of those. But again, insurance doesn't
00:25:21.280cover most of those. And so if you can't afford those, it can send you into this tailspin.
00:25:27.160And you have to be able to trust your doctor when you're in a position like this. And so don't
00:25:33.220do what I did and don't put yourself into a position where you're not trusting the people
00:25:39.880who are medically trained to help you survive, but instead you're trusting these people online
00:25:45.520who may have good outcomes with what they're doing, but you're also not hearing about all
00:25:49.580the ones that are having bad outcomes. Right. Right. Exactly. Exactly. Do you still follow
00:25:57.160these accounts? I got out of all the Facebook groups. I got out of every single Facebook group
00:26:04.740that was like a holistic healing cancer group. And that did wonders for my mental health.
00:26:11.460I still follow Chris Beat Cancer because he does a lot of really great interviews with
00:26:16.720integrative doctors and with traditional doctors. And so I don't I would say I agree with about 70
00:26:25.020percent of what he says. But I really love I love I've learned a lot through listening to
00:26:33.020his interviews with professionals. So I do still follow him, but he's the only one that I follow.
00:26:39.280And really, now that I'm on the other side and I feel like I'm walking into the future,
00:26:45.180I'm kind of ready to stop thinking about cancer at all. And just I just want to live my life now
00:26:53.260and not be worried about because it's always going to hang over my head, the risk of recurrence. And
00:26:58.060I know that. But if I'm constantly affronted with it every time I get online, then I'll
00:27:02.740constantly be be afraid of it and i just can't live that way of course you can't of course you
00:27:07.360can't it's no way to live honestly yeah right yeah um i mean i just i want your feed to be
00:27:16.740puppies and cereal and um you know zach efron is what i want for you yes zach efron a little bit
00:27:26.240of ryan reynolds thrown in on the side little zach efron and ryan reynolds i don't know why
00:27:32.200Zac Efron came up this morning in my like mom text group, but he did. And now I'm just like,
00:27:37.140you know, love me some Efron. I do. No, same. Yeah. Yeah, totally. And it's not weird or creepy
00:27:42.900at all. It is not pervy at all because he's a grown up. He's a grown up now. He is now a grown
00:27:51.580up. I will say my daughter just started watching High School Musical and loves it and also loves
00:28:01.260her semifron yeah absolutely yeah and it is pervy to watch high school musical and think that he's
00:28:06.680hot that is a pervy thing it is listen he was cute he was cute he was cute guy i feel pervy now when
00:28:13.320i watch um this conversation has taken a turn but this is what i think you need right now um
00:28:18.640when i watch ferris bueller's day off because ferris was one of my first crushes but now i
00:28:25.340watch it like oh he's 18 right weird weird old lady it's fine we gotta have it we gotta have it
00:28:37.480we deserve things we really do um what am i not asking you what else should i be asking you about
00:28:43.480about this this world i think the big thing you know just to reiterate my earlier point but my
00:28:50.640The big thing that I would say to anyone that's in the position of being diagnosed with cancer is there's absolutely nothing wrong to look in looking for alternative ways to support your body through healing.
00:29:05.140But if you find yourself in a position where people are vilifying your doctors, then my advice to you would be run, like turn around and run the other way.
00:29:15.520There are a lot of really good doctors that are talking about the benefits of integrative therapy with cancer.
00:29:22.660And I do think the cancer world is slowly shifting toward an integrative model where you're looking at chemotherapy plus these alternative and the way that they can work synergistically.
00:29:35.020um but i think that would just be my big advice to anyone is be really really careful if you get
00:29:42.180and find yourself in this position um to make sure that you're in a place where you can mentally
00:29:48.120trust your doctor and if you find someone that that points you to a that like leads you astray
00:29:54.040from that just run because it's um it's not a healthy place it's a bad place it feels like a
00:30:00.140bad place absolutely and also like sure if you need to work on forgiveness in your life like
00:30:08.540do that but if someone tells you that that you need to forgive someone to heal your cancer like
00:30:14.000block immediately that's probably the biggest thing that would that got to me was people with
00:30:21.120stage four cancer being told they needed to work on their forgiveness to heal their cancer no no
00:30:25.860they do not. Forgiveness is nice, but it's a good thing. We should all forgive. I still don't
00:30:34.580forgive Julia Roberts for ruining my TV show of Charlotte Walsh likes to win. But that was a
00:30:40.320bummer. Still a bummer. And you know what? I'm never going to forgive her. But I don't think
00:30:44.200that that's going to give me cancer. No, I don't. I don't think so either. I loved talking to you.
00:30:51.820um and how can our audience support you and follow your journey i have been really pretty
00:31:00.660open about it on instagram so i met kelly stewart author on instagram um and so you can pop in over
00:31:10.260there i mean again i'm trying to shift my focus from being the cancer girl to just live in life
00:31:16.100now so i i would love for people to to come join the community over there and that's where i'm
00:31:21.840probably the most active yay all right they're gonna find you they're gonna find you i'm sending
00:31:27.160you all the love well thank you thanks for letting me share i i think it's important for people to
00:31:32.040hear this message because it's a it's a dangerous little rabbit hole to fall down in this cancer
00:31:38.240world there's too many dangerous rabbit holes for us to fall down in this in this um social media
00:31:44.780world. They're just, they're just are. Someone needs to close the, I'm trying to close the
00:31:48.840rabbit holes. You're doing a great job. I really appreciate what you're doing. Thank you.
00:32:00.420And that is all we've got for today. Thank you. Thank you. Thank you. Thank you. Thank you,
00:32:05.620Kelly, for being so honest about your journey and also for staying in touch with me all these years.
00:32:11.640all of you can stay in touch with me on the instagrams i know i mean it's just i'm like i
00:32:18.020hate instagram follow me i'm at joe piazza author but whatever two things can be true thank you for
00:32:24.840being with us today i love you all and if you love me then please send this show some love
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